Resource Library 2018-07-17T14:36:40-05:00

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Disability Stigma and Your Patients
The University of Washington Healthy Aging Rehabilitation Research Training Center (RRTC) has released a fact sheet entitled, “Disability Stigma and Your Patients”. The fact sheet is designed as a guide for health care providers on how to have respectful, stigma-free interactions with their patients.

Health Policy Project
The Health Policy Project (HPP) is committed to advancing knowledge and sharing information and best practices for reducing stigma and discrimination based on health issues. This focus is part of their overall effort to expand access to health services for those in greatest need.

Invisible Disabilities Association (IDA)
“Invisible disabilities” describe conditions such as debilitating pain, fatigue, dizziness, cognitive dysfunctions, brain injuries, learning differences, mental health disorders, and hearing and vision impairments. These disabilities are not always obvious to the onlooker, but can limit daily activities, mildly or severely, and vary dramatically from person to person. IDA provides awareness, education, connection and support for people who live with invisible disabilities, and helps loved ones understand these challenges through a variety of media.

Beyond Celiac
The Celiac Awareness initiative is designed to educate the public about this invisible disability. Whether you suffer from celiac or want to support someone with the condition, this site offers many helpful tools.

Healthy Hearing: Overcoming the social stigmas of hearing aids
Hearing loss is associated with old age but people of all ages, including children, experience loss of hearing. Being hard of hearing poses many challenges and can greatly affect everyday life. People with hearing loss have to adapt to life with hearing aids, which is more difficult when negative stereotypes and stigma get in the way. This page discusses ways to overcome stigma, as well as technological advances that can help minimize the appearance of hearing loss.

World Alzheimer’s Month
World Alzheimer’s Month is an annual, international campaign to raise awareness of dementia and challenge the stigma associated with the disease. Sponsored by Alzheimer’s Disease International, this site includes the campaign’s annual report, facts on dimentia, and ways to get involved.

Me vs. the World: The Science of Resiliency | Christian Wilburn | TEDxYouth@SHC
High school senior Christian Wilburn discusses three aspects of resilience that help him manage his complicated and debilitating health condition: hope, gratitude, and fully embracing the things he loves. A humorous, practical and inspiring talk.

Resilience: Crack Your Shell | Heather Warman | TEDxUKY
Heather Warman, who experienced a devastating loss in her youth, shares the experience of going outside her comfort zone and how this helped her develop resilience. She sees loss, setbacks and even “complete destruction” as opportunities for profound growth, and encourages people to “crack their shell” to build resilience and experience newfound gratitude.

The Power of Self-Acceptance | Harry Baker | TED@StateStreet
2012 world champion slam poet Harry Baker talks about his decision to forgo a career in medicine for a self-guided journey into poetry and performance. His talk is an ode to those who are different, woven through with poems on “the gift of not fitting in” and being resilient in the face of negativity and ignorance, as in these lines: “Don’t ever let someone tell you what you can’t do / because just because it’s proven, it doesn’t mean it’s true.” A funny, moving, and powerful talk by a young man who believes poetry is “a less quantifiable way of saving lives.”

HIV Stigma: Let’s Challenge It | Carmen Logie | TEDx UofT
How does stigma affect HIV? Dr. Carmen Logie’s work explores the impact of social and structural contexts on HIV risk and resilience, and how we can influence these contexts to prevent HIV infection.

Back to Basics:Creating and Sustaining Inclusive Health Coalitions. Sustainability Planning.  By: Chris Mackey. Published: 5/17/2018.
In 2016, a report released by the Office of the Assistant Secretary for Health “Public Health 3.0: A Call to Action to Create a 21st Century Public Health Infrastructure” announced a new direction for the practice of public health and population health promotion. Public Health 3.0 formally recognized that health results from an intersection of various factors and that healthy communities are only created through cross-sector collaboration. It has long been a practice within the field to create policy, program, systems, and environmental (PPSE) change through community health coalitions but often the voice and perspectives of people with disabilities is overlooked. As the nation’s largest minority group (that is growing as the population ages), it is imperative that community-wide health initiatives include the dimension of disability as they look to address other aspects of diversity. Thoughtfully and actively recruiting people with disabilities and having strategies in place to sustain that inclusive focus over time is important.

“Hepatitis C Stigma and Empowerment through Positive Speaking in Sydney.” Australian Journal of Community & Applied Social Psychology, 25(5), August 2015.
Although the adverse impacts of health stigma are well established, there is growing evidence that people can reject stigma and become empowered through involvement in education and advocacy. C-een and Heard (C&H) is a positive speaking program in Sydney, Australia that uses educational presentations by people living with hepatitis C to increase the understanding of this condition among health care and community workers. This study explores C&H speakers’ experiences with stigma, as well as their motivations to participate in the program.

“Positive Stigma: Examining Resilience and Empowerment in Overcoming Stigma.” The Annals of the American Academy of Political and Social Science, 591(1):175-185, December 2003.
This article reviews three techiques people have used to overcome the affects of stigma, whether tied to a health condition or for another reason. It focuses on helping people understand proven methods of overcoming discrimination and prejudice.

“Bladder Health and Active Aging: Overcoming Stigma and Innovating Treatments as We Age.”
The Global Coalition on Aging (GCOA) released this report in March 2018. The report highlights the impact bladder health can have on quality of life as one ages and stresses the need for greater awareness of and new, innovative treatment options for overactive bladder (OAB), an increasingly debilitating, yet often unrecognized and under-addressed condition of aging. Report

Invisible Disabilities Association (IDA) in the News. National Public Radio, March 3, 2016.
“Some disabilities are more obvious than others,” cites this report. “Many are immediately apparent, especially if someone relies on a wheelchair or cane. But others, known as invisible disabilities, are not. People who live with them face particular challenges in the workplace and in their communities.” This five-minute segment features interviews with IDA founder Wayne Connell, whose wife has an invisible disability, a legal expert, and a young woman who movingly shares her first-hand experiences.

The transcript below includes comments from readers offering insight and suggestions on living with invisible disabilities:

Weight Prejudice: Myths & Facts
Overweight and obese youth are frequent targets of teasing and victimization. Weight-based stigma, called “weight bias,” can have detrimental effects on emotional well-being as well as physical health. The Rudd Center for Food Policy and Obesity at Yale University released this video to increase youth awareness about weight bias, and to highlight strategies to combat this rapidly growing problem. This video shows the story of Bene, a girl who is teased and victimized about her weight at school. In response to this, Bene decides to educate her classmates about weight bias by making an undercover video that exposes this stigma.

Epilepsy Awareness: What is the importance of Purple Day?
Purple Day focuses on reducing the stigma people with epilepsy face on a daily basis. Neurosurgeon Dr. Taufik Valiante talks about the importance of breaking down barriers between people with and without epilepsy, and helping everyone better understand this condition. Includes a brief but helpful overview of what epilepsy is and how it affects the brain.

Weight Bias in Health Care
Overweight and obese people frequently feel stigmatized in health care settings, and face stereotypes and prejudice from health care providers. This video, hosted by plus-size supermodel Emme, uses commentary by medical experts and dramatic representations to show what “weight bias” is and how it occurs in health care settings. The video presents a range of strategies health care providers can use to reduce bias in clinical practice and optimize the health care experience of overweight and obese patients. The Rudd Center for Food Policy and Obesity at Yale University produced this video.